Sophie Muir

Experience

• 

  Royal Borough of Windsor and Maidenhead

  Jan 1995 - Jul 2003

  Environmental Protection Officer

  Responding to customer enquiries and complaints concerning all aspects of environmental protection legislation; taking formal action where appropriate; and pollution monitoring activities. Liaison with people at all levels both within and outside the organisation.

• 

  CD Team Limited

  Jul 2003 - Mar 2008

  Specialising in supplying CD/DVD media, equipment, software and services direct to the games and software development markets in the UK. Specialising in supplying CD/DVD media, equipment, software and services direct to the games and software development markets in the UK.

  • Senior Account Manager

    Jan 2006 - Mar 2008

  • Account Manager

    Jul 2003 - Jan 2006
• 

  Ofsted

  Sept 2018 - Sept 2020

  Registered Childminder
• 

  Flamingo Chicks

  Jan 2019 - Dec 2019

  Fundraising Consultant
• 

  Timothy Syndrome Alliance

  Sept 2019 - now

  Chair & Founder

  Our mission is to improve the diagnosis, treatment and care of children with CACNA1C-related disrders, including Timothy Syndrome and LongQT8, and to support the families and carers of those diagnosed. By raising awareness we will drive research and clinical development to enhance scientific understanding. Run entirely by parents and volunteers Timothy Syndrome Alliance (TSA) registered as a UK charity in September 2019.

• 

  The VGCCC

  Dec 2022 - now

  CACNA1C
• 

  Rare Disease Research Network

  Oct 2023 - now

  Working Group Member

  The Rare Disease Research Network is a community-led project developing an online platform to facilitate patient-centred rare disease research opportunities.The partnership project between Cambridge Rare Disease Network (CamRARE) and the Patient Led Research Hub is funded by the National Institute for Health and Social Care Research (NIHR) and sponsored by Cambridge University Hospitals NHS Foundation Trust.