Grace O'Hara

Experience

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  Having Faith Cures

  Dec 2016 - Jul 2021

  Founder and Director

  For every headband sold, Having Faith Cures donates one to a child with a life-altering illness and donates a portion of the proceeds to sponsor an orphan in Zambia named Miriam. Partnered with three other nonprofit organizations to satisfy the impact of the disparities of millions around the world by funding well repairs, rescues for those in captivity, and education for children in low income countries.

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  Grace and Alethea

  Aug 2023 - now

  Freelance Photographer
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  Kennedy Krieger Institute

  May 2024 - Dec 2024

  Research Fellow

  Research Fellow at the Kennedy Krieger Institute, working alongside Dr. Rowena NG on improving diversity and equity in clinical trials on rare genetic disorders and other rare disease clinical research.

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  Baylor University

  Aug 2024 - now

  Community Leader

  As a Community Leader at South Russell Residence Hall at Baylor University, I serve freshman students through mentorship in one-on-one conversations and events. In this position, I also serve the building by ensuring security and facility management through on call, desk shifts, and collaboration with my colleagues.

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  Medical University of South Carolina

  Oct 2024 - Oct 2024

  Visiting Scholar - The Norris Lab

  I had the privilege of joining four other patient researchers to visit The Norris Lab, a basic science research lab at the Medical University of South Carolina. The Norris Lab focused on studying the etiology of Hypermobile Ehlers Danlos Syndrome (hEDS), an under-researched genetic loose connective tissue disorder. During this experience, I spent three days shadowing and learning from researchers in the lab, such as Dr. Russell Norris, Dr. Cortney Gensemer, PhD Candidate; Taylor Petrucci, MD PhD Student; Kathryn Byerly, Clinical Coordinator; Victoria Daylor, and Research Specialists Molly Griggs and Amy Weintraub. Furthermore, I sat in on seminars on the current hEDS research initiatives conducted by the lab. This experience was humbling as I have suffered from this condition my whole life. I am so grateful to this lab for hosting me and their dedication to finding answers for a disease with far too many questions. Show less

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  Compassion International

  Feb 2025 - now

  Donor Research Intern